Q & A About My Research

Carleton's Faculty of Graduate and Postdoctoral Affairs did a little Q & A with me about my research. The article can be found online here. Below is the text.

For more information about Carleton's programs or funding visit their website.

Vanier Scholar Gives Back to the Community

In 2010, Carleton PhD student Jihan Abbas was awarded an inaugural Vanier Canada Graduate Scholarship (CGS) that provided $50,000 a year for three years to Canada’s top doctoral students. We thought we would check in with her today to find out what she has been doing since that time.

Q – What kind of a difference has the Vanier Scholarship made in your life?

It has made a tremendous difference. From a research standpoint, it has provided me with the resources necessary to support a participatory research project. Having this support has also enabled me to develop as a scholar as I’ve had the opportunity to write, present, and collaborate with other scholars.

Q – Could you have completed your grad studies at Carleton without this scholarship?

Without the Vanier Scholarship, it certainly would have been difficult to pursue my PhD. The demands of a graduate degree are intense, and without financial support, it would have been impossible for me to juggle my degree, family, and employment, especially given the challenges posed by the current environment. I’m incredibly fortunate to have had this opportunity.

Q – Since we last talked three years ago, are you still researching and working in the area of disability and equality rights?

Yes, my research project is looking at persons with intellectual disabilities and unpaid labour in the home, community, and workplace. I was the former director of research and policy for Independent Living Canada and was fortunate enough to serve as a community co-facilitator with the city of Ottawa to help support the training goals of the Accessibility for Ontarians with Disabilities Act. I was also on the board of directors for ARCH Disability Law Centre. [ARCH Disability Law Centre is a specialty community legal aid clinic dedicated to defending and advancing the equality rights of people with disabilities in Ontario.] I continue to work as an advocate in the community.

My research is participatory so much of what I am doing is in the community connecting with individuals, advocates and agencies. It’s a valuable experience to step outside of the literature and place yourself on the front lines of the issue. It’s a process that allows you to really appreciate how issues are shaped and experienced by stakeholders.

Q -What are a couple of your major research findings since that time?

We tend to measure contributions through paid labour, and because persons with intellectual disabilities are often not part of the formal labour process, their contributions tend to be ignored. What I am learning from engaging with the community is that there are valuable unpaid contributions taking place that we need to acknowledge and support. My research is also reinforcing the importance of providing a space for the community to be heard. I hope that by illustrating the value of this unpaid labour, I can contribute to the inclusion debate and demonstrate what we collectively gain from equity.

Q – What kind of support have you had from your advisory team and department?

I’ve been lucky to have such a supportive and engaged committee. I am working with Andrea Doucet, now at Brock University, who has been incredibly supportive of my research and really pushed me to explore alternative ways I can connect and communicate with the community. Andrea has been great at helping me to identify the threads within my research that I am most passionate about and find ways to position my research within the broader employment and disability debate. Janet Siltanen and Xiaobei Chen also sit on my committee and were instrumental in moving me through the comprehensive exam and proposal process. My committee has been incredible and really helped me zero in on the kinds of contributions I wanted to make through my own research. It’s been a very collaborative process and has certainly helped develop my research and writing.

Q – Why did you originally decide to pursue your grad studies at Carleton?

For me, Carleton made sense because studying here allowed me to remain connected to my community and continue to engage as an advocate. In terms of disability issues, Ottawa is a great place to be. I’ve had the opportunity to connect with incredible people though my research (individuals, scholars, advocates, peers) and that has helped to make this such a valuable experience.

Ottawa Area Focus Group: persons with intellectual disabilities and unpaid work

A new focus group is taking place here at the OILRC and the coordinator is looking for participants to discuss the unpaid work of persons with intellectual disabilities in the home, community, and workplace.

Participants will receive a small honorarium.

Snacks and refreshments will also be provided.

When: Thursday March 22, 2012 at 1-3 PM

Where: The Ottawa Independent Living Resource Centre

If you are interested in sharing your experiences and providing important input to this research initiative, please contact, Jihan Abbas, by phone at 613-218-1160 or by email jabbas@connect.carleton.ca.

This project has been reviewed and cleared by the Carleton University Research Ethics Board: 613-520-2517.

The problem isn't recruitment: employees with disabilities and the federal government

According to a recent report by the Public Service Commission, not only is the federal government not recruiting enough employees with disabilities, but recruitment rates for this group have actually declined over the past three years. While the report suggests the federal government needs to develop new strategies to attract potential employees, as an advocate, the declining rate of recruitment for employees with disabilities speaks to larger problems with accessibility and equity.

In Canada, persons with disabilities experience disproportionately high rates of unemployment (10.4% for persons with disabilities vs 6.8% for persons without disabilities). It is important to keep in mind that these measures do not include working-age persons with disabilities who are not employed but filtered out through official definitions of 'unemployed.' What those of us advocating for disability rights do know is that persons with disabilities want to work, yet persistent barriers continue to prevent their inclusion in the workplace.

If the federal government is experiencing declining rates of recruitment for employees with disabilities, this is more than an issue of 'attracting' potential employees. This speaks directly to the governments lack of commitment on all matters related to disability and accessibility.

Last fall Donna Jodhan launched a constitutional challenge because she was unable to apply online for federal government jobs because the forms were inaccessible. The federal government failed to acknowledge existing barriers and instead reinforced that the website conformed to 'common look and feel' standards, despite the reality that these standards failed to remove barriers for some within the disability community. If potential employees face barriers within the application process itself, what level of understanding and accommodation can employees with disabilities expect once hired?

Furthermore, the federal government sent a strong message to Canadians with disabilities when it recently cancelled the Participation and Activity Limitation Survey (PALS) which gathered information essential to understanding existing barriers. Although PALS certainly had room to improve, it did provide those of us within the community with important information that helped strengthen the case for increased investments in disability related issues.

If the federal government is sincere about increasing the representation of persons with disabilities in its workforce, it needs to start acting as leader with respect to access and inclusion. This means demonstrating a real and renewed commitment to disability issues - a commitment that is all but impossible given the current backdrop of cuts and the lack of funding for disability organizations. This also means acting as a leader with respect to accessibility, which requires a response beyond 'good enough' and instead demonstrates that the federal government is commitment to full accessibility throughout the recruitment process and within each on of its departments. Until that time comes it is difficult to imagine any strategies that will ensure greater representation of persons with disabilities within the federal workforce.

Advocacy groups and Ontario's election

In theory the AODA (Accessibility for Ontarians with Disabilities Act) should ensure accessibility remains a top priority in this province. Yet with little attention paid to disability and access issues throughout the election campaign, it appears the parties, and their leaders, are not getting the message.

The conservative party has refused to even commit to making Ontario fully accessible. They have also failed to agree not cut within those areas disabled Ontarians have made gains. Although this certainly speaks to the priorities, or lack thereof of the conservative party, these frustrating realities also speaks to how marginal the needs of disabled and poor in Ontario have become.

To be certain the focus on "working families" throughout this election campaign has all but excluded the needs of the poor and those falling through the cracks in this province. Indeed, advocacy groups have struggled to have their voices heard during this election campaign. While the above article theorizes why this may be (including political disengagement and the deficit), there is an urgent need to address these issues. Some of the efforts of advocacy groups throughout this election campaign are listed towards the end of this article. ARCH disability law Centre has also outlined some important election issues in their most recent ARCH Alert. Finally, the ODSP Coalition has compiled the following document outlining party responses to specific inquiries around issues related to poverty and ODSP. The lack of commitment from both the Liberals and Conservatives on some of the most pressing issues for ODSP recipients is discouraging.

While the election itself may have ignored these issues, what is certain is that this will not stop the work of advocates and the groups that represent them from continuing to push forward and demand a more equitable Ontario for all.

Ontario must do better

A recent article in the Windsor Star - "Disabled seek voice in vote"- highlights many of the issue facing adults with disabilities in this province. For many, elections are a time to remind those begging for votes that strong and progressive social policies do in fact matter. Indeed, it is time for real and progressive action in this province around disability issues.

For many persons with disabilities, moving into the adult world of disability supports means losing access to a significant number of supports and services (although services for school aged children have certainly not been immune to cuts). As this article illustrates, for many young adults with disabilities this means long waiting lists to access even the most basic supports, isolation and exclusion, and inadequate support from the Ontario Disability Support Program (ODSP).

Yet despite these troubling realities, persons with disabilities in Ontario continue to face cuts to necessary services and supports. Recent reports around the impact of cuts to Ontario's special diet program illustrate this. Little, outside community demands, is being said about the sate of disability supports and services during this election campaign. Simply put, persons with disabilities in Ontario deserve better.

More on the election and accessibility

I've had some great feedback after my last post with leads on more election resources.

For more information about electoral participation and persons with disabilities, check out Michael Prince's working paper for Elections Canada.

Election Ontario has also eliminated the barrier created by permanent address and identification requirements. Voters can now use a temporary form of identification called the "Certificate of Identity and Residence" which lists community facilities, like shelters or food banks, as residence. These certificates do require a signature of a facility representative (as well as the voter).

Ontario AIDS network has put together an excellent strategy for raising HIV/ AIDS issues during this election. This strategy includes a thorough backgrounder, suggested questions for candidates, and opportunities to raise the profile of issues during this campaign.

Accessible electoral process?

While I was at IL Canada we produced several fact sheets about issues that were important to the disability community, including a fact sheet about the political rights of persons with disabilities. This fact sheet outlines some of the barriers facing voters with disabilities.

With Ontario's provincial election fast approaching, questions around accessibility and the voting process are again a priority for the disability community. According to Elections Ontario, some voters in Ontario will have the opportunity to access technologies that will enable a more independence at the polls. These technologies are in addition to existing measures to help make voting more accessible.

While these technologies are a welcome addition to a process that has remained inaccessible for many voters, we must keep in mind that this latest initiative will only be available 147 returning offices, and that political engagement extends beyond just the ballot box. Indeed, we need to continue to push for a process which ensures accessibility throughout the political process (i.e. campaign material in accessible formats, accessible venues for political debates, accessible transportation, the inclusion of disability issues in public debates etc.).

For more information about the candidates and history of your riding, check out the CBC's handy elections tool, and do insist local candidates, campaigns, and events are fully accessible.